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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Tight calves and frequent cramps in my feet. Anyone else get them and know how to prevent them? It can't be lack of exercise, I spend hours wandering around on my feet to relieve the pain in my pelvis. Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012)
Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Paul,
no i fortunately haven't suffered from this but i have read of other's who have,
it's one of the peculiarities this disease brings, also i think if we over compensate walking or standing a different way to aleviate pain it get's us in another place!
hope you're feeling better today,
Suzanne
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Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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hi paul, I went through this stage recently and was told it was due to salt intake but as I don't use salt in/on food I found that answer not for me,it did ease but I still get cramp in the soles of my feet and now and again my toes do their own thing painfully I might add,i did have high potassium for a bit but now back to "normall",maybe you could that checked but should be picked up in bloods mine was,i have had so many checks just lately as been feeling off and they all come back to the R.A,worth a query,dorothy
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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I get cramp in my feet, well I think it is cramp. It happens if I get my foot into a certain position, been happening a lot recently, not a nice thing when it starts.
I feel it coming on, then my big toe tries to go behind the toe next to it, I find it hard to move the toes on the foot affected. I tend to put my other foot on top of my toes and try to massage the toes with he bottom of my foot. I was told by my OT to drink tonic water, not the sugar free one mind you.....Oh dear calories, calories!!
Paula x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Ooooooo Ow!like Paula my toes do the hitler salute! Think it's to do with compression in the sheaths around the ligaments how to be a velvet bulldoser
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Jenni...does that mean that it's not cramp? It kept happening in the early hours of this morning, as soon as I managed to get my foot to feel normal it started again.
Sorry Paul asking questions on your thread.
Paula x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Feels like cramp to me! Hurts like billy-o But the dr says its to do with the ligament alignment being nobbled by the rheumatoid how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 1/29/2010 Posts: 264
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Hi Paul , I get them but for me its a direct side effect of imatinib, I usaully try jiggling from the thigh whilst sitting down but that depends on the state of the knee whether I can do it or not. Happens most when I'm very tired and funny enough sleep seems to help.
Best wishes
Sheila
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Paul Tightening of the calves sounds like fluid retention, common in RA and associated drugs. This can then lead to cramp in the feet because of restricted blood flow. Generally worsens as day progresses so more noticeable watching TV in the evenings or when you clamber into bed at night. Worth speaking to GP about possible low dose diuretic for a time to see if it improves. Could also be restless leg syndrome, a common immune disorder. Lyn 
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